the.com/ehlers danlos syndrome
the body's connective tissue shrugs, ships loose collagen, and calls it structural integrity.
means a group of genetic disorders that weaken collagen, making joints hyperflexible, skin stretchy and fragile, and blood vessels prone to injury.
from named for danish dermatologist edvard ehlers and french physician henri-alexandre danlos, who separately described the stretchy-skin, loose-joint syndrome in the early 1900s, though descriptions of hypermobile humans date back to hippocrates.
thirteen subtypeseach tied to different collagen or protein genes.
vascular typerarest, riskiest, can rupture arteries without warning.
party trick origincircus contortionists likely had undiagnosed hypermobile eds.
diagnosis delayaverage patient waits over a decade for one.
for instance
jameela jamil — actress and activist, diagnosed with hypermobile eds
sara ramirez — grey's anatomy actor, public about vascular eds risks
the beighton score — 9-point flexibility test doctors still use worldwide